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  • 国外患者及家属对肖氏术的评价
     http://www.gmw.cn 2010-11-12 16:09:33 来源:直言了博客

        就肖传国案件和方肖冲突,北美一位网友介绍了一个美国和西欧北欧等西方国家居民为主的网站论坛的记录,说那些记录提供了肖传国案件发生的海外情节线索,应该值得关注。

        按照介绍,去看了看。那个网站论坛叫“Spina Bifida Connection /Support Forum”,主要是为患有脊柱疾病的少儿的父母开设的(当然也有些成年人患者),目的是让父母们彼此交流分享为孩子们治疗和日常保养的经验,以便能帮助孩子们有更多的恢复健康的机会。

        大概是属于业务范围吧,肖传国成了那个论坛的偶尔访客。落实美国NIH-资助的相关科研项目有了新发展,美国相关医院科室的主任发文介绍了肖某手术,而且,除美国和南美之外,英国、丹麦、芬兰、澳大利亚、印度、韩国等同行医院也在开始或即将开始肖某手术科研。于是,肖传国春风得意,四月份,他到那个论坛发了帖子通知各位好消息。(见下图)。

        美国时间8月20日早晨,一位来自爱尔兰的客户说:一个人(肖传国)努力试图发现发明新办法治病救人,却受到一些人要把人打死的攻击,这让我感到沮丧悲哀。任何医术都有风险,就让医生们决定哪个手术对他们的哪些个体病人更适用吧。(见下图,#5)。

        有位家长客户对方某搞的暴力骚扰很是看不过去了,8月24日发帖说:三年前,我的女儿接受过肖某手术,虽然还没有完全痊愈,但健康情况得到明显改善。我知道,有两名患者接受该手术获得成功。我不明白,一个医生在想方设法地帮助患者摆脱疾病痛苦,为什么要攻击他和跟他过不去。(见下图,#12)。

     
     
     

        附件一:肖传国在Spina-Bifida-Connection论坛的帖子:http://spinabifidaconnection.com/showthread.php?t=2022

        #1: 04-17-2010, 12:58 PM /Dr. Xiao: Xiao Procedure: 2 year results in USA, and progress in other countries 。 Dr. Peters, Prof. and Chairman, reported the 2 year results of Xiao Procedure at Beaumont Hospital, USA, a few months ago. They are carrying out the last and 3 year followup recently and the results are even better.http://www.glsuna.com/PetersGLSUNA2010.pdf

        Since the first trial results are very good, NIH awarded $2.3m recently for a multicenter trial of the Xiao Procedure.

    http://projectreporter.nih.gov/proje...fm?aid=7696321

    http://projectreporter.nih.gov/project_info_description.cfm?aid=7696321

        UK is starting Xiao procedure.http://www.xiaouk.com/

        Danmark, Finland, Austrialia, India, serbia, Phillipines, South Korea etc, are also doing or going to do Xiao Procedure.

        #5:08-20-2010, 09:57 AM/ainemc,Junior Member,north of ireland/:I find it very sad that people feel the need to try to sabotage other's work. This man is spending his time and efforts to create a successful procedure to help those with spina bifida. Doing trials will determine if it is successful and I think everybody is aware there will be risks - as there is with any surgery. Our own doctors can determine if the procedure - if it becomes available - is suitable for their individual patients.

        #12: 08-24-2010, 02:42 AM/lovemydaughter/:My daughter had this surgery! My daughter had this experimental surgery 3+ years ago, performed by Dr. Xaio himself, along with Dr. Kenneth Peters from Beaumont Hospital. While it did not give her bladder continence, she is nearly bowel continent now, which is a HUGE improvement for her. So, before you criticize a procedure you have never had direct experience with, please consider the benefits to those children who have had the procedure. I am curious why you are so opposed to a surgery that has helped several patients so far, including my daughter. I know for a fact that at least 2 or more Beaumont patients are completely bowel and bladder continent as a result of this nerve rerouting surgery. That could have been my daughter! Knowing what I know now, I would allow my daughter to have the surgery all over again. And that is spoken from a parent who has direct experience with this surgery.

    原文见直言了博客http://zhiyanle.blog.hexun.com/57185935_d.html
     

     

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